Hi Everybody! Thanks for all the comments! We have been thinking a lot the past couple of weeks about the 2 different devices. We have definitely been leaning more toward Advanced Bionics--we were about 90% sure we want to go with AB. I just checked all of the comments on my last blog, and I feel like it is a reaffirmation that we should choose AB for Ellie. Thanks again, everybody, for your comments!
Ellie got tubes yesterday morning. She was pretty fussy (and hungry!) afterward, but all in all, it went really good. When I asked Dr. Daniels about putting her hearing aids back in, he said I didn't have to...which confused me. I told him that she really gets quite a bit from her hearing aids and we would still like to use them if it was okay with him. He told us she can start using them again in a few days. But this got him thinking....He's not as confident to go ahead with the cochlear implants as he was a couple of weeks ago. He said he's not used to implanting children that have some gain from their hearing aids. (I think maybe he forgot that we had talked about this at our last visit...he didn't have her charts in front of him...). Anways, we will be going to the hospital to do another BAER test (the same hearing test we did in June when we found out about her hearing loss). We are trying to coordinate it with the MRI so that she only needs to be sedated one time. I really hope that we won't have to delay her cochlear implants, but at the same time, I understand that Dr. Daniels wants to be completely thorough. So we will see...I will keep you posted on the dates of the MRI and BAER test.
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Great news Julie! Dr. Daniels is definitely providing the best care that he can for Ellie. Keep us posted and please do not hesitate to contact us if you need anything! Christy
ReplyDeleteShe did great- I did not even hear her fussing! Before I knew it was you, my parents said they saw you in the waiting area and Ellie was just as happy as could be.
ReplyDeleteBTW- he told my mom the same thing. As long as she had any hearing at all, no matter how little, he wanted her to avoid cochlears. Thus the Baha.
ReplyDeleteMy feelings, albeit uneducated LOL, is that my mom cannot hear. We might as well do anything possible to get her hearing as soon as possible.
Dr. Daniels is new to us- we have always gone to Wineman for the last four surgeries. However, I hear Dr. Daniels is the best!
Hi Julie -- I am glad that Ellie did great with the tube procedure!
ReplyDeleteI can totally understand where Dr. Daniels is coming from re: the hesitancy of cochlear inplants. He just wants to make sure if she is getting enough benefit from the hearing aids, that they continue down that road.
Dr. Daniels is a great doctor, but I know from experience, that he sees a lot of patients. He may not always remember every detail about his patients, even with the charts in front of him. That is why it is very important for us as parents to be strong advocates for our children. And that is what you did and are doing for Ellie.
Keep us posted on the the BAER and MRI results.
Once again, if you would like to discuss this over the phone, I would be happy to talk with you. You can reach me via email at: juliwiseman@comcast.net and then we could schedule a time to talk.